A team from CaHRU, led by Dr Jo Middlemass has come together with researchers from the Schools of Education (Prof Terence Karran), Psychology (Dr John Hudson) and Social Science (Despina Laparidou, Prof Niro Siriwardena, Dr Karen Windle, Dr Paul Mansfield) to conduct a study investigating quality of life and outcomes for informal caregivers of people with dementia. Dementia – which includes conditions such as Alzheimer’s – is a progressive degenerative neurological disease with no known cure. There are approximately 800,000 UK patients currently, and it is estimated that by 2050 there will be more than 100 million people suffering from the disease worldwide.
This study, funded by the University of Lincoln Research Investment Fund, aims to improve carer and patient outcomes by developing a psychoeducational intervention for carers of people with dementia, with an emphasis on carers undertaking a more formal monitoring role. The study, which started in August 2014, has a mixed-methods design, involving a systematic literature review and a qualitative study, including both focus groups and interviews, with caregivers of people with dementia and with health care professionals.
The anticipated end of the study is July 2015 and future plans include conducting a feasibility study and thereafter a full clinical trial to test the proposed intervention and its effectiveness and cost-effectiveness on a larger scale.