||LONG COVID PERSONALISED SELF-MANAGEMENT SUPPORT- CO-DESIGN AND EVALUATION (LISTEN)
||NIHR Long Covid
- Prof Fiona Jones, Kingston University
- Professor Monica Busse, Cardiff University
- Professor Nick Sevdalis, King’s College London
- Professor Niro Siriwardena, University of Lincoln
- Professor Adrian Edwards, Cardiff University
- Dr Natalie Joseph-Williams, Cardiff University
- Dr Philip Pallmann, Cardiff University
- Dr Bernadette Sewell, Swansea University
- Dr Jackie McRae, Kingston University
- Dr Jessica Fish, St George’s University Hospitals NHS Foundation Trust
- Dr Rachel Lowe, Cardiff University
- Miss Maria Ines de Sousa de Abreu, PPI contributor
- Dr Ishrat Islam, Cardiff University
- Kingston University
- Cardiff University
- Kings College London
- University of Lincoln
- Swansea University
- St George’s University Hospitals NHS Foundation Trust
||To work in partnership with individuals living with long Covid to design and evaluate a package of self-management support personalised to their needs.
||Our research objectives are to:
- Co-design digital and paper-based self-management resources that are accessible and applicable for individuals with long Covid
- Co-design training for community rehabilitation practitioners to deliver remote one-to-one self-management support
- Establish the clinical and cost effectiveness of the intervention compared to usual care as currently available in the NHS
- Conduct a mixed-methods process evaluation to inform an integration and sustainability package that could be subsequently used (should the intervention be effective) as part of a rapid national scale-up effort.
- We will use participatory methods with an accelerated Experienced-Based Co-Design (AEBCD) to inform intervention development and training.
- We will then progress to an individually randomised controlled trial to evaluate the clinical and cost effectiveness of the personalised self-management support intervention compared to usual care as currently available in the NHS.
- In order to understand mechanisms of action and ensure future scale up, we will conduct a mixed methods process evaluation to capture in detail implementation aspects of the intervention, including barriers to it, as part of the trial.
||The study will develop a LISTEN manual, including a clinical delivery and implementation guide for services. We will provide service user facing materials (including podcasts and blog posts from individuals with long Covid), a LISTEN briefing document and infographic for DHSC/SAGE, including a summary of what we found, what it means and how to scale it.
||Peer reviewed publications.
||The study will develop an intervention, LISTEN, for long Covid which, if effective can be implemented at scale.